I visited with my GP  Dr Barry Mayes and I had a small twitch in my thumb , Bary did not think it was Parkinsons, but gave me a referral to a Neurologist Dr. John Watson at the

San Hospital... he said I had fairly mild symptoms , some facial expression reduction, with reduced arm swing on the left... I did not start any medication.

 

26th September 2005

Appointment with Dr. John Watson

AS you know Mrs Bowyer was to come today so I could examine her before and after a dose of L-dopa. She has done extensive reading and is not keen on trying L-dopa( Sinemet) at present because of the important but controversial issue as to whether it leads to increased dyskinesias.. so nothing started at the moment .

 

6th March 2006

Appointment with Dr. John Watson

Very little change , her voice and expression was a little flat slight reduction in walking ability at times and no worsening in her typing ability...still not keen to start medication.

 

Met a lady from the Parkinson's  foundation her name is Cheri Rice she is 44 years old and had it for 17 years with ten years on Sinemet, she was to have the Deep Brain Stimulation operation and I went to the RNSH to visit her the day before her operation  and again the day after her operation.... which seemed a success.

 

4th September 2006

Appointment with Dr. John Watson

Symptoms are a little worse, example left little finger is no good on the typing keyboard anymore, walking is slower general handwriting seems a little trickier.Still not interested in starting on medication   Had MRI

 

4th June 2007

Appointment with Dr.john Watson

Parkinson's has progressed some and stiffer in the left foot and leg, slower ikn walking and a little stooped at times with a stiff neck, slight tremor in left , Started on Sinemet 100/25 expecting to work up to 3-4 times a day.... but only took 0.5 of tablet at 8am and 1pm, things improved and ok on this dose.

Starting a trial of Cabaser ( agonist ) to work up to 3-5 mg over the next 4 weeks

 

14th August 2007

Appointment with Dr. John Watson

On Cabaser , 4mg each morning, cut out the Sinemet altogether , walking better, better facial expression and voice better.

 

27th November 2007

Appointment with Dr. John Watson

Decided to come off Cabaser  from the 19th November 2007 after cautious reduction.  as had bad diarrhoea, which has resolved since stopping the Cabaser  .. Other problem was mild hair loss and thinning and then also came out in large clumps..  Back onto Sinemet 100/25 half tablet twice a day

 

3rd March 2008

Appointment with Dr.John Watson

Hair loss is still continuing which is of great concern to me ... Dr Watson suggested I try to stop the sinemet for two months and see if this makes any difference .

 

21st July 2008

Appointment with Dr. John Watson

I came off the Sinemet but after four weeks could not stand the rigidity any longer .. Dr.Watson suggested  starting on another Agonist after I come back from overseas trip , would be for ( Pramipexole ( Sifrol ) ..

But I rang him on 6th September and cacelled further appointments .  I have since just stayed on Sinement with my local GP Dr. Barry Mayes

 

 

Appointment with local GP  Dr Alana Sinclair  who hsa referred me to a Neurologist at Westmead   a Dr. Samuel Kim

 

21st April 2012

Appointment with Dr. Samuel Kim

On 1 x 100/25 sinemet  8 am and 12 pm but keeping the afternoon dose of 1/2 tablet at 4pm  but starting to have some dyskinetic movements in lower limbs   possibly Diphasic dyskinesia , because it is hard to break the Sinemet I have been started onto Madopar instead

 

19th May 2012

Appointment with Dr. Samuel Kim

Was given a levodopa dose cycle assessment and oberved for 3 hours ,  he feels i am underdosed.... Now stopped seeing any Neurologist again

 

April 22nd 2016

Appontment with Dr. Dominic Rowe at North Ryde

 

Currently taking Madopar 100/25  three times a day   he suggested another MRI at Northside Medical Imaging and blood tests which were normal

He has changed my medication to Madopar 62.6 taking 1 every three hours at seven , ten one, four , seven and ten ... he also hadded Sifrol ER 0.375mg 1 in the morning, he suggested that I may need to see Dr Paul Silburstein for a future DBS.

 

19th May 2017

Appointment with Dr. Dominic Rowe

I am at present on Madopar 62.5  at 0600 am  and 100/25 at 0900 , 1300 and again half at 1700

Plus started on Neupro patch working up to 6mg patch

 

27th February 2020  still with Dr. Dominic Rowe and medication is now 100/25 Madopar   0600 , 0900, 1200, 1500, and 1800.  plus the 6mg Neupro patch and I Amantadine for dyskenisia.